What Slowed Down
I noticed it before he did, I think, though neither of us said anything at the time. We were having coffee at his kitchen table, the way we did most Saturdays, and I watched his…
ECOG Performance Status in Plain English
When a doctor mentions your ECOG performance status, it can feel like a heavy label that changes the atmosphere of the room. This common patient assessment tool is designed to provide a snapshot of how…
The Unwritten Morning
Have you ever woken up to a new day and really wondered what it held? Not a passing thought, but a real reckoning with the next few hours. When you live with a chronic illness,…
The In-Between Days
Dave, Some days announce themselves as battles. Others slip into your life with just enough symptom to remind you that your disease is always working, but not enough to knock you down. For lack of…
Living with Parkinson’s Disease: Finding Meaning in Everyday Life
We have all seen someone living with Parkinson’s, whether in daily life or in the media. What people do not always see is that many of us are still active, creative, and living meaningful lives.…
